Edited May 22nd. 2023

Today’s post includes a variety of things that I have engaged with or that have been of interest recently.

A  BOOK

“Time to choose,  time to choose. To open and learn or run and lose.”

A few days ago I read Edgar and Elouise, an illustrated  book by Sue Johnson, PhD. Sue Johnson developed Emotional Focused Therapy (EFT) for individuals, families and couples, which in a nutshell is a humanistic based approach developed in tandem with the theory and research findings of adult attachment. Attachment views humans as innately relational and wired for intimate bonding with others. This model prioritizes emotions and emotional regulation as the key organizing factors in our personal experience and in our key relationship interactions. It draws on the principles of attachment science, Carl Rogers and Salvador Minuchin’s concepts and techniques.  I first encountered her work in 2011, as part of a clinical psychology programme I was doing. At the time the focus of EFT on attachment and emotions had felt a welcoming change to the heavily cognitive and behavioral orientation of the programme.

In the videos below Dr Sue Johnson and Ed Tronick show us moments of connection, disconnection and repair both in childhood and adulthood, and also, provide an overview of EFT:

https://www.youtube.com/watch?v=OyCHT9AbD_Y

 https://www.youtube.com/watch?v=xQCg-jC25fo

To come back to the book, it’s for those aged 9 to 90 plus, is written for the inner child in all of us, has the form of a fairy tale and has been inspired by the author’s ten year old granddaughter. The story is set in an enchanted forest, featuring three grand pine trees, several inhabitants, like Edgar the crow, Elouise the fox, Spike the porcupine, Harry the hummingbird, Ronald the rabbit,  country mice, flies and other creatures, and humans, which are called SOAs, the Scariest of All.

Take your place: a new story for Edgar                               

When we first meet Edgar he is a crow with very little confidence. Elouise the fox, on the other hand, seems to be ecstatic about her superiority and beauty. These two have a strong bond, but Elouise has gotten into the habit of putting poor Edgar down and making him feel really small. Spike the porcupine enters the scene. He is wise, well read, compassionate, with therapeutic skills. He knows how to guide others to find their fierceness, tap into the confidence of who they are, see the positive qualities in themselves and others. He also knows about threat responses, biases and obsessions, and old myths.

‘I am NOT the me you say you see! Love me. Help me to see the best of me!”

Spike asks Edgar: “But who gets to decide who you are?  Do we do it ourselves or do we let others decide crow?” He tells him he can’t let Elouise and the SOAs (humans) determine who he is. He talks to Edgar about his ancestors and his family’s migration to find the sea, and about Nordic and Indigenous myths related to crows. He patiently guides him to find a new ‘me’ and choose his story about who he is carefully, and then advises him to try this new way of being and perceiving himself with his best friend, Elouise. Meanwhile, we learn that despite her nasty personality, Elouise has a soft heart and is actually the one who rescued Edgar as a tiny chick and the one who stuck around to raise him, which as we know is against all fox norms, forcing her to leave her pack and live as an outsider.

Spike helps other more timid, shy creatures find their fierceness and courage to act when they are scared. In the book we are informed in simple words about our biological responses to threat. He explains that it is natural and makes good sense to be afraid in a place like the forest because there are real threats. Edgar, in turn, soothes Ronald the timid little rabbit, who is scared all the time, even of his own shadow. He explains to him that rabbits “freeze and hide and only sometimes run. We ALL freeze and hide sometimes” and that “it is actually clever to go still and numb sometimes, but not so if you get stuck there…” because we are bigger than our fears. He also tells him that “Everything has a shadow…. It won’t eat you. It just follows you around in the sunshine.”  A little girl also steps in and shows the little rabbit how to take a deep breath, in, in, in to stop the Trembles.

Then the pine trees and the animals face the biggest threat of all from the SOAs,  “the most scared and mistaken of all creatures, who murder each other all the time. They call it a ‘battle’…”.  They are coming to cut down the trees. Like humans each animal responds differently when scared and anxious, and thus, we learn about “obsessions”, which is when the same moves are repeated over and over to make the worries stop. For instance, Harry the hummingbird paces to-and-fro repeatedly when she’s afraid, but Edgar strokes her head and soothes her fear. He also tells her about his own obsessive behaviour when he was young.

Together we are stronger

Finally, we witness how these small animals are stronger together and how in togetherness they manage to find a way to stand against the big scary SOAs, in order to save the trees and their habitat, without freezing, giving up, doing frantic to-and-fros or running away.

ARTWORK

Speaking of cutting down trees last week we had to cut down a fig tree that had died in our garden. It was a sad affair for me, and I had being postponing the process for over a year, stubbornly watering the tree while knowing deep down that it was probably beyond redemption since last summer it produced no fruit and this year no leaves at all, its brittle branches breaking off and its bark cracked like the surface of dry land.

All three of the old fig trees we found here when we arrived have now died and have been cut down, signifying endings, but in their place three new trees have sprung up in other places. I don’t know whether they will produce any figs or figs as sweet as the ones this small tree gave us over many years in surprisingly great abundance. The experience has found its way  in one of my drawings.

 

 

 

 

 

 

 

 

 

 

I’ve also included a few photos from a recent walk in the rockier, arid and less inhabited parts of the island… There are certain Greek naturescapes like these that I love, as well as, olive groves, fig trees and rocky shores, which along with the language make me viscerally aware of my Greek roots. While I was hiking with the cut tree in mind I thought of a poem I recently came across by the Greek poet, Αντώνης Σκιαθάς,  The only loyal tenant.

“That’s how this summer ended / with embroidered heather / on a Sunday afternoon / in Astipalia**, / on whatever white / was in the sun’s metal sheet. / Unsuspecting, we left / but left a fig tree behind / rummaging through the doors  / looking for the latch to survive  the winter.  / We trusted   / that she wouldn’t empty the house. / That’s how the fig tree, winters and summers   / listening to Scops owls and muffled cries /  remained there all those nights / in the hall towards the cistern / the only faithful tenant”.

** Greek island

The Australian television pantomime style series Adventure Island screened from 1967 to 1972 created by Godfrey Philipp and John Michael Howson was for quite some time top children’s TV show. The story was moralistic with a strong “good over evil” motif. Usually the residents of a town on the island would be tricked in some way by one or more of the “baddies” and often dimwitted Clown, with sawdust for a brain and a very poor memory, would save the day. Each story was serialized over five days, Monday to Friday, and everything turned out alright by Friday. I think the earlier shows began with Nancy in an enchanted wood. She would sit down behind a tree-stump on which was poised a magic book. She began to read the story from the book and then we would see the story played out by the characters themselves. Some of these characters have also seeped into my artwork above.

Some of the more frequent characters were Liza, Mrs Flower Potts, Percy Panda and Dodo Panda, Clown, two Cockatoo and Matilda Mouse puppets, Samson the pussycat and several baddies, like Pirate Captain Crook and Miser Meanie, who counted his money consistently and set fines for things like chatting in the street,…, The characters possessed magic powers which they could call upon if the need arose.  I came across an episode on YouTube, in which some magic seeds in a pot grow into a magic plant that produces glass like flowers with diamonds….

SIGN LANGUAGE

Another topic I’ve decided to include in this post, after listening to a singer’s decision to learn sign language to allow her art to be accessible to deaf people, has to do with the benefits of sign language. I was already aware of the many benefits of learning sign language not only for people who are deaf, but even for people who can hear, in terms of cognition, communication, visual-perceptual skills and spatial awareness.

I delved further into the topic and it seems that sign language is a very versatile language that can be used to talk underwater and taught even to babies with many benefits. Also, sign language can be particularly useful for those working in public roles such as police officers, doctors and other health workers, teachers and social workers. Some other significant benefits, other than been able to communicate with the millions of people with hearing deficits across the world and making art and knowledge more accessible to them, are:

Sign language has been found to help babies communicate better and sooner. According to studies, babies as young as eight months can sign words and imitate signs from their parents, which increases opportunities for parents and children to bond in positive ways and eliminates stress for a child in terms of communicating its needs. Some research suggests that this earlier communication can lead to greater levels of confidence in childhood and beyond, and that it can be beneficial for children with special needs or on the autism spectrum.

Sign language also seems to lead to higher reading levels in children and brings long term cognitive benefits for those who have been signing since they were babies or very young. It has been linked to higher IQ scores. Over the course of their 20 year longitudinal study Dr Linda Acredolo and Dr Susan Goodwyn have discovered that it leads to heightened reasoning skills, raises child’s IQ, babies speak much sooner and use more complex sentences, which sets them up for faster cognitive development.

Sign language enhances our ability to interpret body language because it involves facial expressions, a range of nonverbal signals that people use to communicate their feelings, and bodily cues and hand gestures. Moreover, studies conducted in the UK and elsewhere, have found that another area that seems to be positively impacted by the ability to use sign language is our reaction time and peripheral vision. Reaction time refers to the amount of time that passes between the moment we perceive something and the moment we respond to it and peripheral vision is what we can see around us without having to turn our head. These capacities play a key role in activities, such as, sports, driving or cycling, etc.

And finally, similarly to what is already suggested about how learning a second language can have a range of cognitive benefits, such as, enhancing creativity and even protecting against memory deterioration related diseases [and while there are differences between spoken and sign languages] research shows that the underlying  neural processes are similar.

Art, art habits and processes…..                                                    Artwork added

“Because we are afraid to see the stranger in ourselves, as well as, in the other. We are not ready to feel the change, we prefer to believe that we remain the same and unchanged, so the game goes on as always. Otherwise we will have to find new rules and new games and that requires strengths we don’t have. That’s why we pretend that all changes are non-existent, that we remain who we are and that others remain who they are” From A New Homeland Outside The Window  by Thodoris Kallifatidis

“When I made my debut as Anne Frank the critics wrote that I was Anne, I don’t believe that my life or my stage interpretation or appearance had direct parallels with the heroine of the diary, but that I really borrowed Anne’s soul for those two hours on the stage. Let Anne play Anne. Many years passed before I again experienced such complete identification.” From Changing by actress Liv Ullman

“…. moment by moment, you can actually surf on the waves of your own experience. And the surfboard — I’ve never said this before, and may be overextending the metaphor — but the surfboard with you on it is actually awareness. And you can inhabit that space in a way that’s, in that moment you are already free….” Jon Kabat Zinn

“This allows happiness to become an easily commodified narrative able to potentially accommodate anyone regardless of particular circumstances.” Edgar Cabanas and Eva Illouz

“All the children sat looking at Pippi, who lay flat on the floor, drawing to her heart’s content. ‘But, Pippi,’ said the teacher impatiently, ‘why in the world aren’t you drawing on your paper?’…. ‘I filled that long ago. There isn’t room enough for my whole horse on that little snip of paper.” From Pippi Longstocking by Astrid Lindgren****

**** Astrid Lindgren was a writer, who was also known for her support of children’s and animal rights, as well as her opposition to any form of corporal punishment. In 1993 she was awarded the Right Livelihood Award (also known as the “Alternative Nobel Prize”) “for her unique written work, dedicated to the rights of children and respect for their individuality”

An art product, even a single image, can reflect a layered narrative. It might also involve a complex preparatory process of different things coming together.  It’s as if many threads come together for a little while to create that moment of art, so one could say that the process is just as important as the product….  When I’m engaging with art, books, past experience or the memory of it, recent insights, experiences, emotions and ideas can arise, mingle and interact to produce whatever is produced, influencing what I have made without necessarily leaving visible traces.  It’s as if ideas and themes sort of pour out of me, and initially I need to select a theme or series of themes to work on. I then loosely organize the material on paper or canvas.

Art making also disrupts my tendency to be tidy and relatively organized. The surface on which I might be working on gradually gets filled up with books, objects, different art material and anything else required. I sometimes need to move on to other surfaces, including the floor space.  This especially happens when I move to “flow states”.  Flow states were, initially I think, studied by Mihaly Csikszentmihalyi. My own experience is that of being so absorbed with what I’m doing that my attention is sort of completely held by it. I might skip eating and drinking.  One definition suggests that “psychological flow captures the positive mental state of being completely absorbed, focused, and involved in your activities at a certain point in time, as well as deriving enjoyment from being engaged in that activity.”  However, once I have finished a drawing or series of images or if I’m painting once I’m done for the day I clean up, which is important for me because it creates space  that allows me to carry on with other things, and also, opens up space to start something new, unburdened and free from the previous process and activity.

ARTWORK

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

In today’s’ post I’d also like to write about the gist of some of my recent insights, which actually is not new knowledge at all, but which has become more salient during moments of quiet recently.So, some of what has been salient is: a) the importance of the need to strike a balance between our attention on the past, present and future. At different times in our lives, and depending on what we are dealing with or the requirements of that phase, our attention and the emphasis we put on things are bound to shift. Also, the present moment is what we’ve got, but as human beings living on this planet, the ability or opportunity to make sense of our past and our memory are very important because often this determines the quality of our life, health, choices and agency. Being grounded in the present, returning to the present moment, being aware of our experience moment to moment, to whatever extent possible, is a path towards greater freedom and well-being. In his book, Waking Up, Sam Harris, writes: “It is always now. This might sound trite, but it is the truth. It’s not quite true as a matter of neurology, because our minds are built upon layers of inputs whose timing we know must be different. But it is true as a matter of conscious experience. The reality of your life is always now. And to realize this….  is liberating.”

However, it is also important to be able to look at the future. Part of the experience of orienting ourselves towards a future is not only being able to embrace the inherent not knowing and uncertainty of tomorrow, but also the setting of goals and the sense that there is a supportive container to achieve or to move towards. Otherwise, it can feel like one is in some sense stranded in the present  b) the need to strike a balance between exploring, healing and focusing on our interiority / inner world, and the outer world, and of being knowledgeable and aware of the social contexts and circumstances we are embedded in. Agency, for instance, is an inner and outer affair, so is health, so is safety, and most other things in life.

Bypassing socio-economic and political reality serves particular purposes. After all, to a great extent it is socio-economic realities, for instance, that to a great extent keep millions of people in developing countries poor, to provide one glaring example, and so on.  In their book Manufacturing Happy Citizens: How the Science and Industry of Happiness Control Our Lives, Edgar Cabanas and Eva Illouz discuss how by centering on happiness through only individualized means we stop questioning how socio-economic inequity causes individuals to suffer or how political decisions impact peoples’ emotional well-being. They argue that “if happiness has come to be so prominent in neoliberal societies, it is because it has proven a very useful concept for rekindling, legitimizing and re-institutionalizing individualism in seemingly non-ideological terms through science’s neutral and authoritative discourse…… Allegedly, it is not society that needs reform, but individuals who need to adapt, change and improve…”

Of course, it’s by no means to say that psychological growth and the development of strengths and resilience or the reckoning with our traumas are not recommendable and necessary, especially, when things get tough, but simply resting on the belief that the root of peoples’ problems is to be found only in individuals themselves, rather than in a socio-political and economic reality is not only false, but also problematic. As always, viewing situations and realities from different perspectives allows a bigger picture to emerge. Being eclectic and appreciative of wisdom and knowledge from different sources or people can also be useful.

Finally, today I’ll end this post by referring to some basic ideas and values in relation to our one and precious life that resonate with me. Anyone reading my posts will probably be aware of them already. I’ve often thought that in order to clarify and test the sincerity of our values we need to feel and bring to mind what we deeply wish not only for ourselves, but our children or someone we care about and wish good no matter what, and then ask: what would we truly want and what kind of stories, mythologies, value systems and societies would foster and support this for everyone?

People should have the freedom to shape their own lives and find meaning and happiness in the one life we know for certain we have, focusing our attention on creating good lives in the here and now, while supporting other people to do the same. We can make our lives meaningful by creating our own meaning and purpose as we go along. There is no one-size-fits-all best way to live and we should be tolerant of diverse approaches to life, as long as they do not cause harm. To lead fulfilling lives we need a sense of positive freedom, which is not just the absence of restriction on our choices and undermining of our efforts, but the opportunity to consciously create and choose our own purposes and actions to whatever extent possible, We should support our own and others’ flourishing, a wider sense of happiness and wellbeing, which does not focus only on the sense of feeling content in the moment [although this is also important], but describes a sense of fulfilment and satisfaction with our lives as a whole through making the most of life and our potential and through creating a better world. Democratizing and opening up knowledge to the masses would support this. We need to prioritize and support at a societal level the importance of healthy interconnectedness with other people, our ancestors and descendants, and the natural world. Finally, connecting to emotions of wonder, awe and delight at life with all its pain and joy, human achievements, knowledge, creativity, the evolution of our human history, our miraculously complex body, which is not simply a sack of bones and organs, as some seem to believe, the beauty of the natural world, including us humans, our planet, the Universe….

                                                                                                     Edited  May 1st, 2023

“Sometimes your joy is the source of your smile, but sometimes your smile can be the source of your joy.” THICH NHAT HANH

The difference between inspired medicine and uninspired medicine is love.” Sarah Ruhl

“I’ve never understood organizing world religions around the concept of guilt rather than around the concept of kindness.” Sarah Ruhl

“Be stone no more … She stirs …   I thought: someday I will melt. Someday I will wake up.” Sarah Ruhl

Today’s post is about a book I’ve been reading, which I heard about on a podcast with Sharon Salzberg and Sarah Ruhl, and also, includes two new drawings.

 

 

 

 

 

 

 

 

 

 

The book I’ll be presenting today with the title smile: a memoir, is by Sarah Ruhl, playwright and writer of other things, as she herself notes, and is dedicated to the many doctors and health practitioners that helped her during a decade of health related upheaval. She writes: “This is a story of how I learned to make my way when my body stopped obeying my heart.” Although the book follows the thread of her journey from childbirth to Bell’s palsy, and finally, to the discovery of undiagnosed autoimmune conditions, it inevitably brings together multiple threads of her life.

She begins chapter three with the sentence “This is a chapter of boredom and entropy”. She writes about her Bed Rest period, the books she read, the bags of books her friends brought her, including many books that featured dead twins and dead mothers. Twins also represent symmetry and the idea of the lost self. She threw them out and wondered about the literary obsession with this topic. She writes about her knitting attempts, the letters she wrote to her young daughter and the yet unborn babies, the feeling of confinement and boredom, and how the idea of bed rest was influenced by John Hilton’s publication of Rest and Pain in 1863. The rest cure became very popular during Victorian times for a myriad conditions, but was finally put to rest when physicians realized that it didn’t help traumatized veterans regain their strength instead it wreaked havoc on them physically and mentally.

In chapter five, a day after giving birth, she introduces the theme of Bell’s palsy, a paralysis of the seventh cranial nerve, which the Greeks called “dog spasm”. Ruhl writes that in contemporary Western medicine there is not a lot you can do to treat Bell’s palsy; doctors generally give some steroids, and then one waits for the nerve to grow back, and often it does. However, there are often underlying causes that if taken into account can increase the chances of recovery. Ruhl writes: “I have since learned that a very attentive doctor at the onset of the illness will automatically prescribe you antivirals (many Bell’s cases are caused by a herpes virus), will also test you for Lyme disease (a large percentage of Bell’s cases…..are caused by Lyme), or treat you for Lyme disease as a precaution. This attentive doctor will also give you a script for physical therapy and tell you to eat plenty of antioxidants. My doctor did none of these things.”

The memoir also speaks of the writer’s religious faith and spiritual journey alongside her health related experiences. Ruhl was raised Catholic and in the book she narrates her doubts as she deals with her own health struggles and the uncertainty concerning her newborns, who begin their life in the NICU. She takes us to her childhood and her current refuge in certain Buddhist teachings, as she navigates this period.

A few short extracts that provide a glimpse into her experience, and also shows how things that happen to us early on, which might not be perceived as highly traumatic influence our lives nonetheless:

“In junior high school, Sister Linda was out sick and we had a substitute teacher for Sunday school named Mr. Ivancovitch. He was very tall, and looked a little how I’d imagine Ichabod Crane, with greasy black hair falling over his face and very thick spectacles. The day he took over Sunday school he decided to focus on the bodily suffering of Jesus. He talked at great length and in great detail about how the lungs would have been affected by being on the cross, how the nails would have ripped through the wrists. It made me afraid……

….. I told Sister Linda that I wasn’t ready to get confirmed. I had expected a rain of judgment from Sister Linda, but what I got was mercy, understanding, and gratitude that I had taken the vow so seriously. She smiled gently, told me I could come back to the church anytime, and let me go home……… The day after I dropped out of confirmation class, a small band of Catholic kids circled me on the playground. “What, do you think, you’re better than us?” ….  “What are you now, Jewish?”………….

It took me two decades before I would read Thomas Merton and feel an affinity with Catholicism again, a faith that could be rescued from childhood tormentors, a faith that could be combined with other belief systems….. But that moment on the porch with the Hanukkah cookies probably shaped whole swaths of my life— the search for an ecumenical faith, the mistrust of institutions, the mistrust of certain kinds of girls…”

Ruhl writes about family, origins, belonging, about her husband, her parents and sister, and about her father who passed away in his fifties from cancer, untreated for celiac disease. We get glimpses of how they loved her and how they influenced her. For instance, she writes: “My father used to allude to what he called my mother’s “quick and darting mind.” My father’s mantra was that we girls must marry our intellectual equals, a mantra I wish more fathers would tell their daughters, and onstage my mother valued her intelligence over her image.” In relation to her mother she writes something that sounds true for daughters across the globe: “It’s hard to know where my mother ends and I begin. Isn’t that the story with so many mothers and daughters? I remember when I was little she taught me what a Venn diagram was. We were on a train, from Chicago to Texas, to see my cousins. In the dining car, on a napkin, my mother carefully drew two circles, showing me the overlapping section. “What do these two circles have in common? Here …” she said, pointing. I was fascinated by the logic of that diagram. Mothers and daughters: two circles, and the all-important bounded sections where they are complete unto themselves. Daughters perhaps have a tendency to point at the differences, mothers to point at the commonalities.”

As I mentioned, the major thread of the story, as the title itself denotes, is Bell’s palsy and all that is connected to that, which is every aspect of her life, the various underlying and undiagnosed health issues and reality. Ruhl begins by explaining that the Duchenne smile is considered the gold standard for a smile and it indicates a smile echoed by the eyes crinkling in response, Duchenne called the muscle that creates movement in the eyes during this smile the “muscle of kindness.” She tells us of her discomfort at being photographed, especially, once her smile became crooked. She writes: “At any rate, my general impatience and discomfort with being photographed pre-Bell’s turned, post-Bell’s, to fear and loathing.” She refers to the societal expectations for women to smile in public. She explores Bell’s palsy through the lens of vanity and asymmetry and wonders about what we do with life,which is asymmetrical and where we put all asymmetrical people with one leg, lazy eyes and crooked smiles….

I pondered how we take for granted many of our automatic responses like smiling. I smile frequently. It is something I don’t often think about. So, it was interesting to follow the unfolding of the smile narrative.  She further wonders about Mona Lisa. Many people have wondered about her smile, too. Was Mona Lisa genuinely happy or sad? What did her smile reflect? Ruhl says that neurologists have observed that her smile is asymmetrical, expressing happiness on one side only and her eyes are not engaged in the smile. Who was she anyway? Was she a self portrait of Leonardo da Vinci or his lover? While I was drawing his portrait [see previous post] while i was looking at portraits of him it was apparent that there were similarities between his facial features and expression and that of Mona Lisa. Did she have a secret? She also writes about her pain at not being able to smile back at her three children and her concerns about the “still face” effect on them during these formative years. She wonders if babies can read the warmth of intention from a thwarted smile and of how to experience joy when you cannot physically express it. She worries that she might traumatize them or stifle their empathy development by not being able to sufficiently mirror them.

Ruhl explores the smile through multiple lenses. Scientists for instance, have found that we show more emotion on the left side, which is controlled by the right hemisphere of the brain, which regulates emotion. She makes reference to the findings of neuroscientists around brain neuroplasticity.  She considers whether we can experience joy when we cannot express joy on our face. She asks: Does the smile itself create the happiness? Or does happiness create the smile? She writes: “This was not only a neurological question, and a Buddhist question, it was also a question for actors…” She explains how in the 1970s Ken Campbell developed an approach to acting using the two sides of the faces separately, which he called the enantiodromic approach. … The theory of enantiodromia is that the left and right sides of your face represent different personalities…  Enantiodromia, according to the ancient Greeks, is a study of how opposites become each other ……  I once bought a two -faced wooden puppet from a gift shop here on the island, which had a smiling expression on one side and a mean expression on the other, a kind of Dr Jekyll and Hyde persona. She explains how portrait painters create life and interest in the face through some kind of asymmetry and through dark and light. The sketches by Rembrandt that I have framed on my wall, souvenirs from a trip of long ago to Holland, with my sister and husband, remind me of this. A student of mine liked to draw faces dramatically split in two, very light on one side and very dark on the other.

She writes about the many health care practitioners she sought help from, the more and less inspiring ones. She tells us of one good doctor, who asked for details, was concerned about her health and her losing weight for no apparent reason, screened her for celiac disease, which is an autoimmune condition and can often go undiagnosed your whole life with dire long term consequences. She writes: “It strikes me that the difference between a good doctor and a less-than-good doctor is one part expertise and three parts quality of listening.” The last diagnosis of Lyme disease, which might have additionally triggered Bell’s palsy, comes from an unexpected source, a retired doctor, who offers his insight after reading about her experience online.

Finally, Ruhl ponders on the overuse of illness as a metaphor because we want to give our illness meaning, like we often want to give our suffering meaning, and says that  if we give our illness too much meaning, we become the agent of our own decline. She quotes Susan Sontag, who has written that “Illness is not a metaphor, and … the most truthful way of regarding illness— and the healthiest way of being ill— is one most purified of, most resistant to, metaphoric thinking.” Towards the end of the book Ruhl evaluates her experience of Bell’s palsy and writes: “…that paralysis ended up revealing a potentially life saving diagnosis that affected my whole family…. Maybe Bell’s palsy was a tremendous gift.”

Ultimately, as she engages with living, bringing up children, writing, visiting doctors and trying different healing modalities, she seems to also awaken more to her life and reality. After she watches The Winter’s Tale by Shakespeare she writes:

“I wondered, as I watched The Winter’s Tale: Is Hermione meant to be a real woman or just a metaphor for art? …. ..It is not the husband who wakes the wife, but the woman’s friend…… Be stone no more … She stirs … I thought: someday I will melt. Someday I will wake up.”